Common Adaptive Tools for Cooking and Eating

People living with Fibrodysplasia Ossificans Progressiva (FOP) often face challenges with reach, grip, jaw mobility, and coordination that can make eating and cooking difficult. The tools and adaptations below are suggestions from the FOP community and are intended to promote greater independence, safety, and ease during meal preparation and dining.

Adaptive Drinking Solutions 

Eating independently often starts with drinking. Several cup and straw designs can make hydration easier for people with limited arm, wrist, neck, or jaw mobility. These tools reduce the need for head tilting, firm grip strength, and precise hand positioning, making drinking safer and less fatiguing. Long or bendable straws can also increase independence with drinking using many different cups and water bottles. Below are some examples:

• Kennedy Cup – A spill-proof cup with a J-shaped handle that accommodates a variety of grips and straw types, helping reduce spills while drinking.
• HandiCup – A cup-holder that attaches to wheelchairs or seating surfaces, keeping beverages within easy reach without needing to lift or hold the drink.
• Sipify – A straw designed to cool hot liquids and slow flow — useful for individuals with swallowing or neck mobility challenges.

Adaptive Utensils and Grip Aids

For many people with FOP, bringing food from plate to mouth can be a daily challenge. Adaptive utensils and grip aids can bridge that gap. These eating utensils and grip solutions can help conserve strength and maintain independence during meals. Below are some examples.

• Long forks and spoons – Telescoping or extended utensils help individuals reach food without excessive shoulder or arm movement
• Custom homemade tools – Community-designed utensils like the Adapted Cutlery Spoon and Spatula Fork combine everyday tools with tape or handles to extend reach and stability.
• FUNctional Hand – A universal grip aid that secures and stabilizes various items in hand, and can even be adapted with a dowel to extend reach.

Tools for Preparing and Cooking Meals 

Preparing meals safely requires tools that reduce strain and improve stability. These kitchen tools can minimize the need for extended reach or sustained grip strength.

• No-Lift Pouring Aid – Holds liquid containers (like milk or juice jugs) so that individuals can pour using minimal strength, avoiding heavy lifting.
• Non-slip mats (e.g., Dycem) – Placed under plates, bowls, or cutting boards, these mats help prevent items from sliding during prep and eating tasks.

Tools for a Blended Diet

When jaw mobility is limited, using a blender to prepare food can be helpful for maintaining a balanced diet. Some people with FOP have even used a sandwich press to flatten food to make it easier and safer to eat!